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Tag: Family

A Brave Friend.

I have a friend who has PD. It makes him shake constantly. I feel he has it worse than me. His bravery is plain to see. I feel a fraud without such shakes. Ashamed of any fuss I make. His body suffers seismic quakes. I admire him for all he takes. My friend is young…

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Iron Versus Rainbow

I recall the loathing and fear That first day of school at age four. I just needed mum and dad near In tantrum I lashed out and roared. My head teacher dragged me inside That bright room of faces all new. In distress my eyes glared so wide I pondered on what I should do.…

Aunty Ann’s Oak Tree

Today, I have been thinking back over the most beautiful autumn, here in Suffolk, this year.  Our little cottage garden is a haven of nature.  It is a place of sanctuary and escape for us and, we hope, a haven for wildlife. Back in October, one afternoon, I decided to spend an hour looking after…

Nanny ‘Snips

  “I remember an old woman with long white hair, in two plaits.  She is sitting in a rocking chair, gently rocking back and forth as she watches the flames flicker in the fireplace.  She has an old cream coloured, woolly shawl around her shoulders.  Beneath that, a white blouse.  She is wearing long, heavy,…

Talking Parkinson’s

In the Parkinson’s community that is Parkinson’s Road; a Facebook based global support group that I write for and co-facilitate, the subject of communication between people with Parkinson’s and those close to them, arises frequently.  This is an incredibly important and complex subject and this post is just another brief aspect of a far bigger…

One Year On

Today is a day with some considerable meaning, for me.  It was exactly one year ago, today, that I met with my Neurologist and was diagnosed with Parkinson’s Disease.  On that day I felt a mixture of relief at finally getting the clarity of a conclusive diagnosis after a twenty year search for answers, versus…

Taking a Meaningful Risk

“Depart from discretion, when it interferes with duty.” – Hannah More. One of the aspects of being a person with Parkinson’s, that others may not consider, is just how difficult it is to tell others that you have Parkinson’s; particularly those closest to you.  For some, the decision to disclose the diagnosis can be an…

We Stepped Through the Screen

Meeting people that you know online, in-person for the first time, can be quite daunting. Many people will be used to this scenario either through work or through online dating.   Last weekend, I was excited to be going out to a special event.  As my regular readers will know, I am one of a…

Witnessing Movie History

I was allowed to sit in the Director’s chair!  This chair was made of light wood and was foldable.  It had black material for the seat and the back rest was of the same black material but with one difference; in bold white capital letters, the word ‘DIRECTOR’.  This was no ordinary chair.  Here, in…

Let’s Get Physical

Over the last week, I did something rather extraordinary, for me!  I signed up to membership of our local Leisure Centre! I now have access to use of all of the facilities; including gym, pool and the various classes that run from there.  I have ordered some new gym wear and I have booked myself…