Pick Your Fight Wisely

I was thinking, today, about the extra financial costs that come from being a person with a disability.  I had received a small catalogue of helpful mobility items and useful gadgets that help with tasks that were once so simple.  For example, battery powered jar openers, tin openers and bottle openers as well as gadgets […]

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Yes, You Will Get Through This

When life does not go your way, When your world falls apart, When your outlook is grey. Yes, you will get through this. When trouble lurks at your door, When there’s no way forward, When the outcome looks poor. Yes, you will get through this. When your self-belief is low, When there’s no solution, When […]

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Taking a Meaningful Risk

“Depart from discretion, when it interferes with duty.” – Hannah More. One of the aspects of being a person with Parkinson’s, that others may not consider, is just how difficult it is to tell others that you have Parkinson’s; particularly those closest to you.  For some, the decision to disclose the diagnosis can be an […]

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You Are Not Alone

“Shame derives its power from being unspeakable.” – Brene Brown. As a co-facilitator of a support group and support community for people with Parkinson’s, I see that one of the most difficult aspects for anyone participating, is to disclose personal difficulty.  Whatever we may be dealing with, there may be a significant fear of judgement […]

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You Can Do Parkinson’s

One of the difficulties that people with Parkinson’s tell me about is their sense of frustration at the realisation their diagnosis has changed them forever.  I know this feeling, myself.  I too am well aware of the limitations this disease has upon my life and of how I will never regain my former good health […]

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Deciding to Accept Parkinson’s

“The more I expect, the more unhappy I am going to be.  The more I accept, the more serene I am.” – Michael J. Fox. One of the most common difficulties that I see, in other people with Parkinson’s, is frustration.  Indeed, I see this in myself at times, too.  Frustration that comes from having […]

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When Identity is Withdrawn

Identity is a significant subject for people living with a chronic health disease/illness or disability. For some, the chronic health problem or disability is with them from birth.  In those cases the person’s identity, as being someone living with a chronic health problem or disability, is more likely to be formed earlier in life.  Here, […]

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