Tag: Parkinsons Disease

Keep It Real

“Life seems sometimes like nothing more than a series of losses, from beginning to end.  That’s the given.  How you respond to those losses, what you make of what’s left, that’s the part you have to make up as you go.” – Katharine Weber. One of the things that many people may not realise, is…

Let’s Get Physical

Over the last week, I did something rather extraordinary, for me!  I signed up to membership of our local Leisure Centre! I now have access to use of all of the facilities; including gym, pool and the various classes that run from there.  I have ordered some new gym wear and I have booked myself…

You Are Not Alone

“Shame derives its power from being unspeakable.” – Brene Brown. As a co-facilitator of a support group and support community for people with Parkinson’s, I see that one of the most difficult aspects for anyone participating, is to disclose personal difficulty.  Whatever we may be dealing with, there may be a significant fear of judgement…

Morning Has Broken.

Morning Has Broken: My phone alarm goes off at 6.45am, every day; it’s time to take my medication.  This week, the sultry, velvet voice of Ella Fitzgerald singing ‘Summertime’, in a duet with the magical Louis Armstrong, has been my favourite way for the start of each new day to be announced. (Photo: Ella Fitzgerald.  Source: dunderbeck1980 on…

Parkinson’s Meds Side Effects

One of the subjects that people with Parkinson’s have both experience of and opinion about is that of side effects caused by medication.  The possible side effects of short and long-term medication use are well listed within the information leaflets found within medication packs.  Side effects are also well listed and, more importantly,  described on…

Honest Cakes for Parkinson’s

One of my cousins lives in the north of England.  She is a kind person and she has taken a keen interest in learning about Parkinson’s, since my diagnosis last year.  She has offered many a kind word, from the other end of the phone, and she has witnessed some of the worst of my…

You Can Do Parkinson’s

One of the difficulties that people with Parkinson’s tell me about is their sense of frustration at the realisation their diagnosis has changed them forever.  I know this feeling, myself.  I too am well aware of the limitations this disease has upon my life and of how I will never regain my former good health…

It Only Gets Worse.

This message for Prime Minister May. I find myself wracked with disgust. Your team’s letter arrived here today. The contents are simply unjust. Your Government must simply not know Parkinson’s so far has no cure. Many symptoms are hidden from show. Each day is a trial to endure. My Neurologist saw me last week. He…

My Parkinson’s Review

As many of my readers who are, themselves, living with Parkinson’s will know, we patients have to attend a regular consultation with our Neurologists to discuss how we have been doing and to monitor for disease progression.  Today, I attended my second review appointment.  This time, to help save me a longer journey to Ipswich…

Deciding to Accept Parkinson’s

“The more I expect, the more unhappy I am going to be.  The more I accept, the more serene I am.” – Michael J. Fox. One of the most common difficulties that I see, in other people with Parkinson’s, is frustration.  Indeed, I see this in myself at times, too.  Frustration that comes from having…